I'm bad. I saw my rheumatologist this morning and he agreed Xeljanz was not working. So I am off of it, and waiting for some samples of Orencia, a biologic. Weekly needles won't be too bad. Also a DMARD, Arava, which I probably going to affect my liver.
So instead of being happy I don't have to drag through the pain, I just have been weeping and weeping. People I know with RA who have tried Orencia, said it lasted a year of less. Arava is going to be a no, in a couple of weeks. These are the last possible drugs I can take. (He said maybe methotrexate, but I tried that route with my last RD. It was a no after the first shot.)
I am glad I am off the prednisone. I truly feel like myself again. But sad I can't use it as a backup. And so I am double dosing on Motrin to get through the next few days? Weeks?
If this drug fails, it will be long term care for me. I know what those places are like. I will lose everything. But then, being bed ridden means I will have lost everything anyway.
Please pray for me to make it through the next two weeks, till I get the Orencia and they start to work. And that the meds will work! My rheumatologist says I have the most severe RA he has ever encountered.
Thanks listening to another whine!
So instead of being happy I don't have to drag through the pain, I just have been weeping and weeping. People I know with RA who have tried Orencia, said it lasted a year of less. Arava is going to be a no, in a couple of weeks. These are the last possible drugs I can take. (He said maybe methotrexate, but I tried that route with my last RD. It was a no after the first shot.)
I am glad I am off the prednisone. I truly feel like myself again. But sad I can't use it as a backup. And so I am double dosing on Motrin to get through the next few days? Weeks?
If this drug fails, it will be long term care for me. I know what those places are like. I will lose everything. But then, being bed ridden means I will have lost everything anyway.
Please pray for me to make it through the next two weeks, till I get the Orencia and they start to work. And that the meds will work! My rheumatologist says I have the most severe RA he has ever encountered.
Thanks listening to another whine!