NEED PRAYER NOW
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Dear Lynn, If it means anything I would hug you and try to understand how furious you are feeling. I would imagine it's very annoying, when progress is being made and then bang something bad happens. I want to pray directly for you and your John. I pray lord you intervene with Lynn husband and get this sorted out. I pray the sickness ceases, and that John is put back on track with the right medical help. I know sometimes I have been a softy, but I really do care. Lord help Lynn and John. Amen xxx
D
John's feeling better. He's still bleeding somewhere inside. This bleeder has been with him since the beginning. He's probably had a couple dozen pints of blood over the course of all this. Now the GIs want to colonoscopy his entire intestines. Not a bad idea. Might be in there. Might not be, but they've done quite a few tests to find out where he's bleeding and haven't found it yet.
Only one problem, they're also thinking they should wait until he's home before doing this. He will be on blood thinners the rest of his life. Why wait until he's even more vulnerable to failing health without help? What am I supposed to do if he becomes that weak at home? Alas, once again a weekend rolls along, so nothing happens, if anything happens, until Monday.
I have wrapped my head around this better. John might live. John might die. I can't twist God's wrist to get my way on this, so, I am once again depleted. I will love John for the rest of his life and see what God does with all of this.
Only one problem, they're also thinking they should wait until he's home before doing this. He will be on blood thinners the rest of his life. Why wait until he's even more vulnerable to failing health without help? What am I supposed to do if he becomes that weak at home? Alas, once again a weekend rolls along, so nothing happens, if anything happens, until Monday.
I have wrapped my head around this better. John might live. John might die. I can't twist God's wrist to get my way on this, so, I am once again depleted. I will love John for the rest of his life and see what God does with all of this.
Dear Lynn, I've been waiting so much to hear from you, I really am concerned for you. I know I can't help, but I really want you to know I care. I will pray that you get more insight on John's illness, and the support you need. I understand the feeling of being afraid. I too was thrown in the deep end with Rods illness, at one point I thought I was going to have to go in a women's refuge, due to rods temper and illness. Its so scary. lord I pray that you support my friend Lynn, and be with them both. I pray lord for the help they need, so much, as it means so much. write to me anytime Lynn. Remember you are not alone. xxx
M
Hi Lyn, it's unbelievable isn't it, just how much diarrhoea can come out of
one person. My aunt had the runs for the last couple of week she was in hospital, also
when she came out.
I think this is a common problem with feeding tubes. Another issue is all those antibiotics
they kill of the good gut bacteria. As soon as my aunt came home I started giving her
probiotic yoghurts - that and the normal home food has helped.
Keep going, you can do it. It's hard, it's frustrating, it's a battle, it's hard to control
all those thoughts going around and around. It's difficult to control those highs and
lows. But God has brought you both so far and He has not finishes with you both yet.
I was in the same position where my Aunt should have died in the natural but God had
a supernatural plan. At one point after she had been in hospital several weeks, a nurse
from my aunts original ward came to work on the new ward, she was surprised to see
my aunt and couldn't believe she was doing ok. I even brought the "do not resuscitate'
order home to prove just what God did for us by saving her life.
You have come so far just like pilgrims progess - lol. There will be more
mountains and valleys but with each trek you are strengthening your faith
muscles.
Did you know that faith is powerful. It quenches those fiery darts.
Ephesians 6:16 NLT In addition to all of these, hold up the shield of faith to stop
the fiery arrows of the devil.
Dont give up hope, it's not a vane hope it's a real hope of expectation.
Don't worry about controlling this situation, let God take over the steering
wheel. I know it's hard it's a lesson I have had to learn too. At one point I got
really depressed and it felt as if God had abandoned us. Then I was reminded
that God loves us so much, He sacrificed His own son. There is no way God
will abandon you and John after He has paid such a huge price to save you
both.
God bless
x
Romans 5:3-5 NLT
[3] We can rejoice, too, when we run into problems and trials, for we know that
they help us develop endurance. [4] And endurance develops strength of character,
and character strengthens our confident hope of salvation. [5] And this hope will
not lead to disappointment. For we know how dearly God loves us, because he
has given us the Holy Spirit to fill our hearts with his love.
one person. My aunt had the runs for the last couple of week she was in hospital, also
when she came out.
I think this is a common problem with feeding tubes. Another issue is all those antibiotics
they kill of the good gut bacteria. As soon as my aunt came home I started giving her
probiotic yoghurts - that and the normal home food has helped.
Keep going, you can do it. It's hard, it's frustrating, it's a battle, it's hard to control
all those thoughts going around and around. It's difficult to control those highs and
lows. But God has brought you both so far and He has not finishes with you both yet.
I was in the same position where my Aunt should have died in the natural but God had
a supernatural plan. At one point after she had been in hospital several weeks, a nurse
from my aunts original ward came to work on the new ward, she was surprised to see
my aunt and couldn't believe she was doing ok. I even brought the "do not resuscitate'
order home to prove just what God did for us by saving her life.
You have come so far just like pilgrims progess - lol. There will be more
mountains and valleys but with each trek you are strengthening your faith
muscles.
Did you know that faith is powerful. It quenches those fiery darts.
Ephesians 6:16 NLT In addition to all of these, hold up the shield of faith to stop
the fiery arrows of the devil.
Dont give up hope, it's not a vane hope it's a real hope of expectation.
Don't worry about controlling this situation, let God take over the steering
wheel. I know it's hard it's a lesson I have had to learn too. At one point I got
really depressed and it felt as if God had abandoned us. Then I was reminded
that God loves us so much, He sacrificed His own son. There is no way God
will abandon you and John after He has paid such a huge price to save you
both.
God bless
x
Romans 5:3-5 NLT
[3] We can rejoice, too, when we run into problems and trials, for we know that
they help us develop endurance. [4] And endurance develops strength of character,
and character strengthens our confident hope of salvation. [5] And this hope will
not lead to disappointment. For we know how dearly God loves us, because he
has given us the Holy Spirit to fill our hearts with his love.
D
When John went back to the VA and was put in the ICU, two people in dark blue coats stood outside near the nurses' station. I had a vague memory of "I know him." He was waiting for something, looked in John's room, and the biggest look of surprise hit his face. He turned to his coworker to point to John, and she had the same astonished look. They were the two people that got John from the VA to HUP that first night in the ambulance. They were almost certain they were pushing along a living corpse. Everyone, including me, thought he would die that day. They were thrilled. So was his original doctor.
I haven't given up hope. I'm just also accepting that no matter how God does this, it's the best move for all concerned, (even if it doesn't feel that way sometimes.)
Today he got a visit from some lady pitching a rehab. First time we heard numbers. After 20 days, (and everyone seems to think this will take five weeks, but I keep thinking they're the same people who can't believe John has been in ICU for 11 weeks, and in the hospital for 12 so far, so it could be six or seven weeks too), it will cost us $165 a day. IF we can prove we're financially strapped (and we're fine financially, just as long as nothing goes wrong lol), they might cut that down.
This is my thought, it's like we need shelter and someone offers us shelter. (And John really does need rehab, so we have no problems with he goes to rehab. We want that!)
"Quick, move in right now! Don't worry about how much it cost, you'll love it. And then once you're moved in then we'll deal with the money part. WE decide how much you pay. All you have to do is show us all your finances so we can."
Not even! Tell me how much you're charging us a day, and I'll figure out if we can afford it. I'm a grownup. I know our finances. I know what we can and can't afford. Besides, they already know! The VA doesn't treat just anybody off the street. They need to know that you're a vet, and they need how much you make per year to see if you fit within the guidelines they have to use their services. John fits. I don't. They know that because they already have the paperwork that proves it. And, besides, they also know how much we make didn't change for this year, because there was no cost-of-living increase for Social Security recipients.
That's enough knowledge. That and our say-so.
And John's doing exactly what I feared he'd do, if he goes into a rehab that will cost us. He's planning on bailing out and coming home the second he thinks it costs too much. I already told him he can't do that. I don't have the physical strength to help him enough. And, more important, I want him to go back to chopping fresh veggies. Seems like a simple task, but he doesn't have the dexterity to do it. He's been working on just walking. I know he needs dexterity in his hands. Right now, he can't even get his fingers to go straight. He loves cooking dinner. I want him to do that again. (That and he's so far better at it than I am. lol)
I haven't given up hope. I'm just also accepting that no matter how God does this, it's the best move for all concerned, (even if it doesn't feel that way sometimes.)
Today he got a visit from some lady pitching a rehab. First time we heard numbers. After 20 days, (and everyone seems to think this will take five weeks, but I keep thinking they're the same people who can't believe John has been in ICU for 11 weeks, and in the hospital for 12 so far, so it could be six or seven weeks too), it will cost us $165 a day. IF we can prove we're financially strapped (and we're fine financially, just as long as nothing goes wrong lol), they might cut that down.
This is my thought, it's like we need shelter and someone offers us shelter. (And John really does need rehab, so we have no problems with he goes to rehab. We want that!)
"Quick, move in right now! Don't worry about how much it cost, you'll love it. And then once you're moved in then we'll deal with the money part. WE decide how much you pay. All you have to do is show us all your finances so we can."
Not even! Tell me how much you're charging us a day, and I'll figure out if we can afford it. I'm a grownup. I know our finances. I know what we can and can't afford. Besides, they already know! The VA doesn't treat just anybody off the street. They need to know that you're a vet, and they need how much you make per year to see if you fit within the guidelines they have to use their services. John fits. I don't. They know that because they already have the paperwork that proves it. And, besides, they also know how much we make didn't change for this year, because there was no cost-of-living increase for Social Security recipients.
That's enough knowledge. That and our say-so.
And John's doing exactly what I feared he'd do, if he goes into a rehab that will cost us. He's planning on bailing out and coming home the second he thinks it costs too much. I already told him he can't do that. I don't have the physical strength to help him enough. And, more important, I want him to go back to chopping fresh veggies. Seems like a simple task, but he doesn't have the dexterity to do it. He's been working on just walking. I know he needs dexterity in his hands. Right now, he can't even get his fingers to go straight. He loves cooking dinner. I want him to do that again. (That and he's so far better at it than I am. lol)
Shame on you.
Depleted HAS helped us.
Oh my goodness, she has helped us so much.
She has shown us, by example, how to go from hurt, disappointment and questioning God to...never mind, you wouldn't even begin to grasp it.
I have been on CC for, maybe a month? This is the first time I have become angry.
I am very angry at what you've just said to her.
Depleted HAS helped us.
Oh my goodness, she has helped us so much.
She has shown us, by example, how to go from hurt, disappointment and questioning God to...never mind, you wouldn't even begin to grasp it.
I have been on CC for, maybe a month? This is the first time I have become angry.
I am very angry at what you've just said to her.
Prayers are being said for John, Anyone on here should also see the courage and bravery Lynn has shown, and what a lively example of a true christian she is. Thank the Lord for such a person like Lynn. Lord shine down on Lynn today and give her your love, I'm praying to you lord to help this couple and asking you to give a bit of warmth. Thank you God for staying with John. Amen xxx
D
John and I spent the evening doing two wonderful things -- watching the first half of the Super Bowl, (or, I tried, but had to give up because of pain five minutes before halftime), and he finally got to see the presents in his Christmas/birthday stocking. His nurse was one of those picayune nurses (the type who still insist visitors wear the plastic gown and rubber gloves even if he is done the antibiotics fr his C-diff, and if he's given something to use, it can't leave the room again), so I had to sneak his gifts to him when we were sure she wasn't around. But he finally got things like nail clippers, mouthwash, and lotion for hands and lips. (Plus I brought in the three main teddy bears and kept them hidden in the backpack, but pulled them up, so he could see them. He now knows no one stole the bears or our computers, but the delusion was so real, he feels like it happened. I figure seeing will solidify it never happened, although I told him I'm not bringing in the desktop computers. lol)
Three times last week, John was told they were going to do a colonoscopy to continue to look for his bleeder. Four times he was told they weren't. I guess they're into beating their own record, or the weekend crew is trying to beat the weekday crew's record.
-- Friday night, he was going to go to rehab on Monday.
-- Yesterday day he was told his blood count is fine -- blood counts raise and lower in everyone, so no big deal.
-- That evening he was given a pint of blood because his blood count was too low, but still no big deal.
-- I talked to his nighttime weekend doctor last night and she said it was fine if he happens to continue to lose blood when he's home. He will be physically stronger, so won't get weak like he did last week, plus he will have to go to the hospital once a month so they can check his blood. Don't worry. All is fine. And, just because the social worker says "Monday" she doesn't really mean Monday. She means they're going to try and get him in rehab sometime that week.
-- Today's doctor says he's going to get another endoscopy to find the bleeder, and if they can't find it, then he gets a colonoscopy.
Strangely, we no longer count any of this as anything but a distinct, "something is going to happen this week." lol
BUT some of John's friends stopped by and one knew there is another VA rehab in the Northeast. TWO free rehabs, but I suspect they never considered one "that far away" because they don't think I'd want to drive that far! (From the lowest point of South Philly to the farthest point in the Far Northeast, there are 14 miles through Philly. It's not distance. It's traffic. I like bad traffic. It gives me more time to sing along with the radio without making people want to puncture their eardrums.) Hello? I no longer fear the Schuylkill! I'm game for anywhere as long as he gets the therapy he needs and it doesn't put us into terminal debt. All I want is for him to come home healthy and strong without forever fearing he'll still do one-step-backs when he gets home.
So, I just told you how today went, but just because they gave us plans for the week doesn't really mean we know what will happen this week. That's fine. He feels good today.
Three times last week, John was told they were going to do a colonoscopy to continue to look for his bleeder. Four times he was told they weren't. I guess they're into beating their own record, or the weekend crew is trying to beat the weekday crew's record.
-- Friday night, he was going to go to rehab on Monday.
-- Yesterday day he was told his blood count is fine -- blood counts raise and lower in everyone, so no big deal.
-- That evening he was given a pint of blood because his blood count was too low, but still no big deal.
-- I talked to his nighttime weekend doctor last night and she said it was fine if he happens to continue to lose blood when he's home. He will be physically stronger, so won't get weak like he did last week, plus he will have to go to the hospital once a month so they can check his blood. Don't worry. All is fine. And, just because the social worker says "Monday" she doesn't really mean Monday. She means they're going to try and get him in rehab sometime that week.
-- Today's doctor says he's going to get another endoscopy to find the bleeder, and if they can't find it, then he gets a colonoscopy.
Strangely, we no longer count any of this as anything but a distinct, "something is going to happen this week." lol
BUT some of John's friends stopped by and one knew there is another VA rehab in the Northeast. TWO free rehabs, but I suspect they never considered one "that far away" because they don't think I'd want to drive that far! (From the lowest point of South Philly to the farthest point in the Far Northeast, there are 14 miles through Philly. It's not distance. It's traffic. I like bad traffic. It gives me more time to sing along with the radio without making people want to puncture their eardrums.) Hello? I no longer fear the Schuylkill! I'm game for anywhere as long as he gets the therapy he needs and it doesn't put us into terminal debt. All I want is for him to come home healthy and strong without forever fearing he'll still do one-step-backs when he gets home.
So, I just told you how today went, but just because they gave us plans for the week doesn't really mean we know what will happen this week. That's fine. He feels good today.
M
He's going to that VA (free) rehab across the street tomorrow! Yippee!!
Thank you Lord for this step forward. Lord we know doctors don't know everything,
we know man's word is not "the final word" we know that even in difficulties you
are taking us on journey and you are walking it with us every step of the way.
Lord I prayer for John's continued healing that all this blood loss will cease.
For strength in his body and mind, I pray John will develope a deeper relationship with
you that he will walk away from this situation declaring Hallujah what a saviour.
Give Lynn peace and rest. Lord touch these aches and pains she gets and bring healing
to her body too.
Amen