Quicky Prayer Request

Depleted · Mar 28, 2016

I have been working hard since noon to avoid bursting out in tears while I get done what I have to get done, so I can find out what's happening to John. (Hubby. See "Pray Now" thread for details.) And now I find out he's staying in the damn hospital because he's bleeding (still), and he's probably crying. And I want to go see him, but bursting into tears while driving and then seeing him isn't a good idea. And I should eat first, but I can't because I'm crying. And I have to see him. And he's as bummed as I am, but I'm crying. And he needs someone to cheer him up.

So please some anti-crying time -- just until I get home tonight would be good.

tourist · Mar 28, 2016

You are in dire need of rest. Please consider taking the night off and stay home and relax. I know how hard it is to try to take care of a very sick spouse while at the same time trying to manage your own life all alone. I will say a prayer for you and ask my wife to do the same. She always mentions you and your husband in church requesting prayer.

coby · Mar 28, 2016

praying for you both

Depleted · Mar 28, 2016

tourist said:

Can't. I have a doctor's appointment myself tomorrow at 2 PM. Been waiting for two months and postponing it means waiting 5 weeks. I think (pretty sure) my goiter is getting to the point of affecting my bronchial tube. It's stretching my neck just enough to cause aspiration episodes. (I knew why food was getting caught in the back of my throat for the last couple of years, but thought it was getting caught headed toward the esophagus. What John has gone through taught me a whole lot more about what's in our necks.) If I'm right, I have to learn how to deal with it, because I can't spend 10 days in another hospital without John.

So I need to know what their plans are for him ASAP because there is no way I'm letting them spend another three weeks to dicker over if they should check to see if he's bleeding somewhere else. It took them three weeks last time just to finally decide to scope his entire digestive system. And then after all that, they say he was never bleeding there. And now the doctor at the rehab says his results say he has a duodenal ulcer. The hospital swears he doesn't.

He's been their ping pong ball far too longer, and I'm the dog who needs to be unleashed to get somewhere with all the lies, cover ups, and ineptness.

Someone has to care for the person in the middle of all this, and I'm doing my best to force them to care.

Spoonfulofsugar · Mar 28, 2016

Depleted said:

Ask to see the x rays. That is the only way you will know. I understand being the dog watching over all the lies and ineptness. I was suspended for a week from the rehab after I let a nurse have it when I was the caretaker for my dad. lol
They let my dad sit in a chair unattended when the chart clearly said he was high fall risk. They let his butt get blistered when I kept telling them to just use baby ointment. The last straw was when I wasnt there(I was there 8 hrs a day) the nurse went in and took all of my candy! My dad coulnt get to it because he was bound to a bed or straped in a chair but she took it anyways. I ripped it from her greqsy hands and called her a few choice words. Trust me,I was at the end of my rope as I imagine you are!
One day you will look back on this and laugh about something in it> I promise. But now you must rest in order to be of any good to anyone right? I sent one up for you. God is with you. Lean in heavy on him sister. Phil 4:13

Blessings

levi85 · Mar 28, 2016

Lord we pray, let you bless Depleted and her husband. we lay this matter before you and seek your blessings. Let john, have a healing, the bleeding stop. Please give your peace and comfort to both of them. in Jesus name, Amen!

Depleted · Mar 28, 2016

I'm back! (And my back feels like I've been stuck in a 2X2' box for three days. I am really disabled, and this isn't making it easier.)

Guess who now says John has a stomach ulcer? The same people who swore (TWICE) he has absolutely no bleeding in his digestive system -- the GIs. And his attending physician swore he had no ulcers the last time John spent time in that hospital, and then questioned the sanity of the rehab doctor for thinking such a silly thing. (Ha! And guess who told the rehab doctor that the hospital swore John had no ulcer, when the rehab doctor tried to tell me he had an ulcer. Fortunately, I was running down the whole list of lies we got before I knew the latest from John, so she pretty much told me they're inept at the hospital.)

So, "tomorrow" (John thinks tomorrow morning from some scheduling stuff he overheard) they're going to give him another endoscopy, and assuming the ulcer is doing what ulcers do -- bleed -- they'll cauterize it or do something to stop it from bleeding. Which, of course, means I may or may not be seeing him. (I suspect I will, simply because there was nowhere to park in a half mile radius when I came home, so I'm hoping I can move the car before I get a ticket parking where I parked.)

I have absolutely no idea how they can screw this up, but they've been surprisingly creative in all the ways they have screwed up, so it's not as if I'm not expecting more creativity on their part. I'm simply hoping however they screw it up, it's still gets to the point that John can get out of that damn hospital quickly.

I don't think so though. His rehab doctor said something that when I told John, he agreed with. (I'm the optimist, so I didn't think it at all.) She said, "He is still a very sick man, who wasn't ready for rehab and still isn't." (Doesn't that sound like she was saying they were inept? Or am I misreading that?)

Where does a person go when a hospital can't find anything wrong with him (because apparently a bed wound big enough to use as a coffee mug, and ulcer in his stomach that's not there, not there, is there, not there, not there, is there, and a feeding tube STILL his only source of nutrition), and he isn't sick enough to stay in the hospital, but not well enough to rehab? Were we supposed to take a vacation in between?

Seriously, even though my sarcasm is dripping, what is someone like John supposed to do in a sane medical system? Does anyone know? (Has anyone ever had the sane medical system to find out?)

Oh! And as upset as I was? John took it in stride. Arggghhhh! (He gets annoyed with me sometimes for getting so upset, but I keep telling him worrying is my job. And he's not really upset with me, because sometimes he bursts out crying, I think he hurts that bad, and then he chuckles and tells me, he's crying because I'm so good to him.)
But prayers work. I was so "trusting God" on this one that I took a box of tissues with me.

Never needed them, although he enjoyed blowing his nose with soft tissues for a change.

I know. I know! I need to trust God more.

But prayers did work, so thank you.

Depleted · Mar 28, 2016

Spoonfulofsugar said:

No! Seriously? If they kick you out, you only get kicked out for a week?

I've been incredibly restrained because I feared they'd never let me back! I am so going to "choice word" it, as they're taking John back out of that place!

I already emailed his palliative nurse to tell her what I thought of her after he left. (Hey. I got a sign from God. I was reading Charles Spurgeon's devotional, saw the word "palliate," looked it up to see if it was related to her title, found out it was the verb for her title, discovered it has three means, figured out she got the wrong meaning for her job description, and then I still had her business card with her email address. She thought her job was to do the second definition, but it's supposed to be the first definition. And check out the link to see what I'm saying, because that's exactly what I told her too. No choice words, but tell me that wasn't a sign from God.)

As for look back on this and laugh? I don't think so. I have never met such cold, inept people in my life and I thought people went into medicine because they like to help. They all smile and act very supportive, but look what they're doing to him simply because they want to cover up their failures.

I did laugh at the young medical student's phone message tonight. (She's a medical student at the University of Pennsylvania. They do their apprenticeship at the Hospital of the U. of Penn called HUP or at the Veteran's Hospital a block away. Through this, John's been a patient at both hospitals -- outsourced to HUP because the VA doesn't do stents. So she was tasked to call families of patients admitted through the ER into the VA Hospital. She didn't know I was with John at the time, so my message said, "Hi. I'm part of your husbands team at the University of Pennsylvania Hospital, and wanted to tell you your husband will be getting an endoscopy tomorrow."

No. Seriously. That was it. Not who she was, nor who my husband is, and she said the wrong hospital. Had I not known what was going on, I would have thought, "Why did they move him to HUP this late at night after finally getting him into a room? And, who is she? And how is she related to any of this?" But, she's a kid. (Probably a very smart kid. U. of Penn is one of the most prestigious medical colleges in the country.) And she obviously has no training to make those calls. So, that's already funny. (And, yes. I called her back to play dumb, but mostly because I've done stuff like that, and know getting such a call would drill into me, "Be more careful next time." lol)

iveseenworse · Mar 29, 2016

i pray john receives a complete recovery soon. i pray you get joy and hope, mostly peace lynn as you prepare to help even more. i pray the Lord uses all these delays for good and you are able to patientey wait on Him.

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