Moi Moi disease

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pickles

Senior Member
Apr 20, 2009
14,479
182
63
#1
Hi all, I know I have not been around for a while, alot has happened and I will share over time. :)
But for now, I'll get to why I am posting here in this forum.
About a year ago, my daughter was diagnosed with moi moi disease, a very rare disease but more
common in the Philippines.
Information has been limited here in the U.S.
If any here know anything about this disease, it would be a blessing if you could help me better
understand it.
Thankyou so much for any help and God bless:) you all.
pickles
 

Magenta

Senior Member
Jul 3, 2015
55,812
25,990
113
#3
Always lovely to see you, Pickles. I am sorry to heart about your daughter's affliction...

Dear Lord, fill Pickles' whole family with courage in knowing You’re with them in every moment.
Draw Pickles' daughter close to You when she feels afraid. Give her strength and confidence in her
identity as Your child. Help her to find rest in the embrace of Your love, as she lives in the spiritual
shelter You provide for her, and provide joy that no hard circumstance can take away. In her weakness,
put Your power on full display. Thank You that Your Word says
I am convinced that neither death nor
life, neither angels nor demons, neither the present nor the future, nor any powers, neither height,
nor depth, nor anything else in all creation, will be able to separate us from the love of God that
is in Christ Jesus our Lord.
Amen.

 
Oct 28, 2022
322
53
28
#4
Hi all, I know I have not been around for a while, alot has happened and I will share over time. :)
But for now, I'll get to why I am posting here in this forum.
About a year ago, my daughter was diagnosed with moi moi disease, a very rare disease but more
common in the Philippines.
Information has been limited here in the U.S.
If any here know anything about this disease, it would be a blessing if you could help me better
understand it.
Thankyou so much for any help and God bless:) you all.
pickles
Recommendation, fruits/vegetables/legumes that increase the strength of blood vessels, and the same which clean vessels, and increase blood flow, along with proper vitamins and minerals.

It will of course depend on the situation, and whether there is any internal bleeding or complications. Eliminate any animal fats (flesh), especially if they live in countries which a primary part of diet includes, beef, chicken, and certain types of sea creatures (shrimp, clam, octopus, etc). Switch to analog, or to vegetarian entirely.

Hot/cold hydro therapy will also increase vascular blood circulation.
 

pickles

Senior Member
Apr 20, 2009
14,479
182
63
#5
Moya Moya disease-
as with all sickness, disease, afflictions, accidents etc. they are always from the adversary, never from God.
http://www.mayfieldclinic.com/pe-moyamoya.htm
Thankyou,still keeping up the good fight.:)
Thankyou also for the info, I guess I should have been more spacific, I am looking for more personal related info.
Also sorry about the spelling, my weakness.:)

Thankyou and God bless
pickles
 

pickles

Senior Member
Apr 20, 2009
14,479
182
63
#6
Thankyou Magenta for your prayers. :)
We need all the prayers we can get to fight this disease.
Hugs and God bless
pickles