NEED PRAYER NOW

She is using her time wisely in prayer, managing her household by herself, and taking care of her sick husband. I guess that doing the Lord's work is a waste of time in your eyes.

I pray That God keeps blessing you with free Rehab. I pray God keeps you going, I pray more than anything for you both to be blessed with something wonderful. Even if it takes time. Be patient and keep your prayers with God. God knows your anxiety. Love your faithful Friend Mandy xx

Father God, I ask you in Jesus Name to find this bleeding inside John, I pray to you lord that you intervene and stop this at once. This is in Lynn,s health also father, please stop all upset mentioned and find this bleeding. I pray you save John's life Lord, it means so much to all of us. Amen

Lord allow your peace to surround Lynn and her husband. Touch the minds, eyes and hands of the nurses and doctors so that they might have Your wisdom and do Your will Lord. Straighten the crooked paths and revel Your plan so that they may have peace and joy in You Lord,

We pray for healing, we pray for hope, we pray for wisdom and we thank You abundantly for Your many blessings. Lord may your will be done on Earth as it is in Heaven. In Jesus holy name we pray, amen.

I ask you lord to lift up Lynn and her husband, show them please lord. Its so long now lord, Lynn is a great friend and I've become so close to her daily message's like everyone else has on here. we stand a united front for Lynn , and ask once more you bless them both. Amen

And "tomorrow morning" became "early this afternoon," which means "3 PM." He got no food again for well over a day, and then wasn't allowed to have ice since midnight.

Results of the colonoscopy -- some time in John's life he swallowed a tiny spring. No idea where or when, wasn't intentional, and not related to getting a valve replaced. (My immediate thought.) Also, it caused no damage to his intestines, nor is there any damage of any kind throughout his lower intestines -- no bleeders, no rashes or abrasions from his tube stuck in him for months now, no polyps, (yippee, no need for another colonoscopy for a decade either lol), no ulcers, no nothing. And, since I was having trouble with my phone (I can make calls, but couldn't receive calls. I HATE Verizon!), and since I left thinking he would go for this procedure shortly after I left, so called to check on him at 3, 5, and 7:30, but could only find out his nurse was busy, John was gone, and then John was back, I went back tonight to see him. (It snowed! Yeesh! It snowed. I had to clean off the car before I went, although the snow was only just that much snow and not slippery, this was definitely my day for if-it-can-go-wrong-it-will. lol) He was sleeping. I didn't mind, just as long as I could find out he was still alive and okay.

But he woke up a little while later, and he has a camera going through him. The one image I've had ever since I heard they wanted him to swallow a camera was, "Whoever planned to grow up just to remove poop off a camera someday?" (Don't mind me. I'm still in the 20th century. lol) No one gets that job. I forgot about Wi-Fi. They have the retrieval device that stores the camera's images around John, and it looks like a cross between a miniature backpack and a fanny pack, but more set up like a sling for an arm. Fascinating technology. (I'm also very much amazed by the 21st century technology too.)

Except, I know our history. Both John and I have had at-home sleep studies. And for both of us, the machine that was supposed to study our sleep that night (with gizmos, doohickeys and thingamajigs attached to our nose and mouth, and possibly sticking to our chest too, but it was so long ago, all I remember was how uncomfortable it was) didn't work. They worked 95% of the time, but for us they did not. I will be shocked if that 21st century camera traveling through John's innards works right!

And they took away John's right to choose his treatment, plus they out-and-out lied to him. The stuff they feed him through the feeding tube causes him diarrhea. They told him when they did the colonoscopy they were going to take away his tube for his bowel movements. He said it first, but we both said it twice. We asked that they put back it in for just one more day. When he has to go he really has to go and he still cannot sit, once more go to the bathroom by himself, so a bedpan is required. (He had to use a bedpan for two days at the last hospital. He remembers very little about the last hospital. He does remember that he had to lie way back to use the bedpan, because... well picture using one without sitting ever coming into the picture. It hurt his back badly. He fears the bedpan now.) And, when a patient rings a nurse the nurse comes anywhere between 1 minutes and 45 minutes later. Now picture that for diarrhea. Not happening, right? that's all we asked, that he doesn't have to worry about that for one day afterward, and they agreed. He doesn't have that tube now, and he was just getting fed as I was leaving.

Oh, and the reason they took it out? "It can cause an infection." Duh! You just checked, nothing wrong at that spot so it can, but hasn't!

He did request that the nurse, (finally a big guy, instead of a petite woman lol) come quickly IF he presses the bell for a nurse, and he promised that's the only reason he'll press that bell tonight. The nurse agreed. I've become pretty good at judging nurses by now, and I believe that nurse. Unfortunately, Saturday Day Nurses always seem to be the worst nurses for John in the last 12 Saturdays, so this is still upsetting.

Oh, and the social worker stopped by this afternoon to tell John he has to choose between two rehabs and the one across the street wasn't one of the two choices. Does this seem familiar to anyone? The exact same thing they do every Friday afternoon to John since he's been in this hospital. lol I don't think anyone bothers to call his social workers to tell them anything has changed. I'm beginning to think a social worker in a hospital simply goes around to every patient's room on Friday afternoon to talk about rehab options, even if the patient is in there then for a hangnail. lol

The only thing John worries about is he signed a paper for the social worker that first Friday when he had no idea what he was doing or why. He has very few memories of HUP, and he barely remembers anything from the first week at the VA. This was also back when he had delirium, so I won't let that signed paper count. He really wants me there for social workers, so I told him to kick out anyone who comes to pitch their rehab this weekend.

Before I left, John was getting hooked up for another pint of blood. His nurse told him he needed blood last night, but didn't get any because of this procedure. So, as far as I see it, we have John's still bleeding somewhere, they haven't found where, and they need to deal with that BEFORE rehab. One doctor actually tried to get John to come back someday for this colonoscopy, but the ward's doctor pushed to have it done now. And by "now," that meant a mere eight days after they decided he needed it. I absolutely know anything anyone tells John this weekend doesn't count as reality. Weekend doctors have no idea what's going on, but pretend they do. Nurses follow their lead.

Other problem. I'm still disabled with chronic pain, and still can't do more than three hours of effort/work per day. Today, I planned to go see John after the procedure, but then I found out morning means afternoon, so went to see him this morning. After I went, had to go to the post office to pick up a package that couldn't be delivered yesterday, because I was visiting John at the VA Hospital. So, I had to pick up that package -- whatever it was, because I sure gave up on ordering stuff after the last fiasco with packages being delivered -- after leaving the VA hospital. The package was from the VA hospital -- a prescription for John. (Hello? Not like I haven't told his primary he's IN the hospital, so go visit him. And yet, she hasn't, and yet, she still prescribed a drug John's been on. Whoa! )

Then I had to go grocery shopping, then I spent hours on the phone, or waiting for them to call me back, with Verizon trying to get my phone fixed, (because John couldn't call me.) And, the reason Verizon is our phone company was because I had to renegotiate Internet service by the 15th, so we got stuck with a new router, and I'm trying to figure out how to hook it up, but I'm afraid to for fear Verizon phone people can't call me if I screw up the Internet connection. (We were on MagicJack, which connects through the Internet.) Shoved some dinner in me, couldn't get to John, so decided to drive over there. Had to clean off the car to do that. (Phone service works finally. I called home from John's room.) Windshield wipers need replacing, so I had to clean the window in the hospital parking lot. Then had to park a block away to get home. So, I've done more work today than a healthy person usually does, and I'm in such pain, I'm not sure I can sleep tonight.

I also know I can't keep up this pace. So John is no better off or no worse, and I am worse for the wear.

Dear Lynn, you must look after yourself, your doing to much. Take it easier. I pray God gives you rest, and I pray you get it. Amen

Hi Lynn, one of the many things I discovered with my Aunt,
is that medical staff definately do not know everything.

There can be highly trained experienced staff and staff who only just
about manage to spell antibiotic Lol. Then there are staff who really
want to help and take ownership of what happens to a patient and there
are others who just shrug and move onto the next patient.

In essence, medical staff are just like everybody else.

As an example I asked several staff if my Aunt would need oxygen at home.
They all said no, despite that they kept putting my aunt on oxygen at the
hospital and they never really looked into why she kept needing it.

She has now been home 6 weeks, three outpatient appointments later, it
has now been decided she needs to be on oxygen at night time and so this
system was delivered and set up in the house this week.

I came to the conclusion the original hospital just wanted to move onto the
next patient.

Be persistent, don't be afraid to ask questions and when the staff seem to
contradict each other, ask why and say you want to discuss why there are
so many differences of opinion. That will keep them on their toes and they
will start to look into things properly - I had to do this with my aunt.

Also don't underestimate God's timing. So often I wanted everything to
happen now Lol. But through all the delays it all worked itself out with
my Aunt.

Lord I prayer for wisdom and peace of mind for Lynn, keep her heart and
mind set on you. Lord move things forward in the direction you want them
to go and we rebuke any and all attempts to cause confusion or more
problems in this situation. Heal John, stop this bleeding may he reach
out and spiritually touch the hem of your garment and hold onto you.
The medical staff are mystified but nothing is hidden from you, bring all
things hidden into the open that they can be dealt with.

Strenghten both Lynn and John, build them up physically and spiritually.
Thank you Lord for all you have done and for all you are continuing to do.
Amen

Wow Lyn, I think I would be tempted to write out a list of things
which need doing, write it in big letters and stick it over John's bed.

Then also write on it the date it was observed and the number of days
it took to get it done or still not done etc.

If anyone says anything, just say it's your way of keeping track of
what people tell you and John.

I am continueing to pray for you and John. I can see how hard all of this must be and how fustrating. I am praying that the staff will all work together and that God will bring along a doctor who will fight your corner, and does not attagonise the other staff. Sometimes nursing staff and doctors can be bit jobsoworth. Kind of the computer says no, you need the staff who are prepared to go that extra mile. I think things are much worse when multiple disciplines are involved.
I can still remember being in hospital with pneumonia and as it had resulted when I aspirated bile during a gynea procedure I was under the care of the gynea consultants none of them would take the decision to discharge me, oh we don't know the procedure (there are hospital protocols for discharge) they wouldn't even listen to my chest. I felt like saying for goodness sake man up you are a doctor make a decision.

Wow..any way you can change hospitals?

Will pray.

An idea just came to mind. Whenever I am going through a very stressful time in life. I surround myself with encouraging Bible verses. I was a poor college student when I started it. So I would write them on post it notes and index cards. Then tape it all round my apartment.
Like in the fridge, in the bathroom mirror,behind cabinet doors, etc,

That way no matter where I was at home I would have something to remind me of God's love and peace.

Perhaps it would help to surround his hospital room with scripture or play some gospel or something.

Just a thought.

I apologize if I step out of bounds but the more I think about it, the master it makes me.....

He is bleeding internally because of a spring he swallowed from a feeding tube the hospital,placed inside,of him?

That and the other stories point to gross negligence.

A hospital oversight committee needs to look into what is going on.

The nurse should have changed the bandage, but instead she let the night nurse do it. That is just laziness and incompetence.

I hope and pray the new head unit nurse is better.

If not I would contact a lawyer because they should be allowed to do that to you and other families seeking help.

Probably 95% of the people there really care and want to help, but it's the mistakes and laziness of the 5% that can cause a lot of harm.

Most hospitals catch and fire those folks.

Praying that God will,move in the hearts and minds of those around you.

Madder...not master....grrr phone.