NEED PRAYER NOW

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Depleted

Guest
I tried, but I can't visit John today. The bank took this moment to take away my debit card, not because I did anything wrong, but because they have to send me a new one with a chip in it. It will get here about the 4th of February.

19 inches of snow. (Was 21 inches, but some melting.) Some streets are plowed. Some aren't. Some sidewalks are shoveled. Some aren't. No access to streets, because no one thinks it's their job to clear off disability access ramps. And today was the day I had to pick up my prescriptions. It's January, so there is "deductibles" before my insurance will pay for anything, so what usually cost me $15, cost me $37. The bank is two blocks further from the pharmacy and the bus is two blocks over. Too tired already to do both, so opted for the bus, (since I can't take a cab without my debit card.) Half an hour waiting for the bus before a guy told me the bus wasn't running today. (I checked the site, but must have read it wrong.) By then my shoes, socks and bottom of my pants were soaked and my feet were frozen. Walked home, (didn't quite make "don't cry.")

Now my legs feel like I did crunches. Walking a mile is no problem. Walking through piles of snow at every intersection did me in. I also ended up blocking traffic on a major street because this was the moment a 4-wheel-drive pickup truck decided to get off the pile of snow in the divide on the road. (Not only was he in 42 inches of snow he was parked on a cement median strip about five inches high and gunning his wheels, splattering snow behind him, so I couldn't stand there where I belonged and couldn't get across. We have very-special people in South Philly, where basic common sense and rules to the road do not apply to them.)

And my waist hurts too, because it already takes core muscles to walk, more core muscles to get through piles of snow, and I know the second I eat something to take a pain pill the woman from the bank, who is trying to unfreeze my debit card, will call.

What changes tomorrow? Still $40 left to live on until I can get to the bank.

But John's plug (why do they call a feeding tube into the stomach a plug? Seems like it's the opposite of a plug) was successful. It's better than having it shoved through his nose, but also a good excuse not to rush HE WANTS TO EAT AFTER 10 WEEKS OF NOT EATING! Five days since the speech therapist (aka the Swallow Lady) promised to come back to tell him if he can eat or drink anything but ice chips. Why is being nauseous a good reason not to eat? I choose when to eat when I'm nauseous based on when the feeling lowers. I don't simply stop all together.

All questions best left in person, but I can't get there to ask.
 
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skylove7

Guest
My prayers continue for John,....Lynn
And you too
Praying too that you are safe
Amen
 

happyface

Senior Member
Jan 19, 2009
1,496
35
48
Hi Lynn, I'm with you, let us know how you are, thinking about you alot.xxx love Mandy
 

Dutch

Room Moderator
Staff member
Feb 28, 2010
14
1
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Yes of course we will be praying Jesus lives, Thank You for giving us the message about Atwhatcost's Husband \. Going to Prayer room to pray for them . God Bless You. Please let here know that we will be praying for her
 

happyface

Senior Member
Jan 19, 2009
1,496
35
48
I tried, but I can't visit John today. The bank took this moment to take away my debit card, not because I did anything wrong, but because they have to send me a new one with a chip in it. It will get here about the 4th of February.

19 inches of snow. (Was 21 inches, but some melting.) Some streets are plowed. Some aren't. Some sidewalks are shoveled. Some aren't. No access to streets, because no one thinks it's their job to clear off disability access ramps. And today was the day I had to pick up my prescriptions. It's January, so there is "deductibles" before my insurance will pay for anything, so what usually cost me $15, cost me $37. The bank is two blocks further from the pharmacy and the bus is two blocks over. Too tired already to do both, so opted for the bus, (since I can't take a cab without my debit card.) Half an hour waiting for the bus before a guy told me the bus wasn't running today. (I checked the site, but must have read it wrong.) By then my shoes, socks and bottom of my pants were soaked and my feet were frozen. Walked home, (didn't quite make "don't cry.")

Now my legs feel like I did crunches. Walking a mile is no problem. Walking through piles of snow at every intersection did me in. I also ended up blocking traffic on a major street because this was the moment a 4-wheel-drive pickup truck decided to get off the pile of snow in the divide on the road. (Not only was he in 42 inches of snow he was parked on a cement median strip about five inches high and gunning his wheels, splattering snow behind him, so I couldn't stand there where I belonged and couldn't get across. We have very-special people in South Philly, where basic common sense and rules to the road do not apply to them.)

And my waist hurts too, because it already takes core muscles to walk, more core muscles to get through piles of snow, and I know the second I eat something to take a pain pill the woman from the bank, who is trying to unfreeze my debit card, will call.

What changes tomorrow? Still $40 left to live on until I can get to the bank.

But John's plug (why do they call a feeding tube into the stomach a plug? Seems like it's the opposite of a plug) was successful. It's better than having it shoved through his nose, but also a good excuse not to rush HE WANTS TO EAT AFTER 10 WEEKS OF NOT EATING! Five days since the speech therapist (aka the Swallow Lady) promised to come back to tell him if he can eat or drink anything but ice chips. Why is being nauseous a good reason not to eat? I choose when to eat when I'm nauseous based on when the feeling lowers. I don't simply stop all together.

All questions best left in person, but I can't get there to ask.
Hi Lynn, Just to let you know you have been prayed for in the prayer room, so my thoughts are well meaning for your situation, somehow it's keeping me strong and happy I think about you. xxx
 
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Depleted

Guest
John stood today! Three times! Not pretty, but his legs held him up. (Definitely a step forward day!)

 
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skylove7

Guest
Awesome!
Amen! Amen!
Praying for him always Lynn
 
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Txroads

Guest
If anyone has a free moment in their day.... I'll take a heartfelt prayer... And God bless for it
 
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Txroads

Guest
Feel free to start your own thread, stating your prayer request.. :)
Aww... Thanks but... That's ok.... Just knowing someone cared enough to mention me is good enough... Nothing stronger than prayer... Kinda like the centurion with Jesus... Naw I ain't worthy enough for all that LORD.. You just say the word and that's as good as it gets... Same thing.. Lol
 
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Ericelsiervo

Guest
Hey i need prayer that i become a new christian againg because i was baptized but due to smoking ciggarettes againg i came back to a life i had left back from hustling and i want to feel like a man againg i know the Lord Jesus will help me and transform me like a claypot and give me form and make me stronger also pray for my family to gain health and quit smoking ciggarettes also that i leave the street life happily and become a strong minded christian also for my friends and uncle to stop shooting dope and regain there lifes and stay strong and the skills i dont have they accomplish threw the lord that is my strength and blessed the family that follows for good things and that i recieve restoration and good advice from the church members i need to recieve these blessings please and thank you from your friend and brother in christ thank you and amen.
 
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Txroads

Guest
Hey i need prayer that i become a new christian againg because i was baptized but due to smoking ciggarettes againg i came back to a life i had left back from hustling and i want to feel like a man againg i know the Lord Jesus will help me and transform me like a claypot and give me form and make me stronger also pray for my family to gain health and quit smoking ciggarettes also that i leave the street life happily and become a strong minded christian also for my friends and uncle to stop shooting dope and regain there lifes and stay strong and the skills i dont have they accomplish threw the lord that is my strength and blessed the family that follows for good things and that i recieve restoration and good advice from the church members i need to recieve these blessings please and thank you from your friend and brother in christ thank you and amen.
May the LORD bless you and keep you and your family... May his light shine upon you and give you his strength and peace...
 
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iveseenworse

Guest
i pray you receive much from the Lord you and your family. He loves to give gift's.
 
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Depleted

Guest
If anyone has a free moment in their day.... I'll take a heartfelt prayer... And God bless for it
If you have a free moment, please read the full thread. Hubby and I could use all the prayers we can get. Thanks.
 
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Txroads

Guest
If you have a free moment, please read the full thread. Hubby and I could use all the prayers we can get. Thanks.
In all things we know our faith in the LORD will never fail because his love never fails. He can do the impossile, he is the maker of miracles.. To him we pray and give our thanks. May you receive all his bkessings.
 
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Depleted

Guest
John should be going to the rehab across the street on Friday! Yippee!

His trach tube has been changed to a smaller one, so his neck can heal over from it. He's no longer stuck with the hose leading to it feeding his lungs moist air. (I can see his neck now. It's been a while. lol) He can't eat until the trach is gone and neck is healed, but he was running down a long list of stuff he wants to eat. He may be a bit fixated, since he only paused to show a silent scream while being catheterized, and then went right back to telling the next thing he wants to eat. Sadly, the first thing he wants to eat, he can't eat until he gets his dentures -- chicken and peppers over pasta with a blah-de-blah sauce. (Hey, he's the cook. I only know "spaghetti sauce." He's either going to be making it himself or tell me how to make it step-by-step. He will be eating it the second he can though.)

And his sisters stopped by to visit last night. Added bonus: Both are, or have been, nurses, so they were chock full of information and stories he could use. (One asked him how long he's been diabetic, and judged that by the bruising on his hands from needle-sticks. I didn't know that was a thing.)

It's a good day when both of us confidentially said NO to hospital staff. (And yes, raised voices were used in both cases.)

Some guy came in ready to take blood from his veins. John has some kind of thingamajig on his hand, (I want to call it a port, but that's not what his nurse or John called it), so they can take blood from there now. His veins have been collapsing for weeks when they do that, to the point that one time they had to try 35 times to get one needle in. The guy didn't want to use that, so John said that's the only way he'd consent.

His nurse came in. The only difference between taking blood directly out of him or using that device is they have to stop the Heparin for a little while before using it. Okay. They did, and then the nurse took the blood with no problems about half an hour to 45-minutes later. Yay!

And, when I came home, there was a message on my machine. A social worker at the hospital needed info from me. (I didn't know the hospital knew my legal first name.) When I called, I found out she wanted to set me up with the proper equipment -- trach tubes, bags of feeding tube food, the equipment to suck out mucus straight from his trach, a hospital bed, and commode. NO! When he comes home, he's eating and won't have a trach tube. (I have used the equipment to suck mucus out of his mouth, but no way am I sticking a plastic tube down his throat through a hole in his neck. My fear is scratching his throat.) We don't have space for a hospital bed and he hates them anyway. They're too short! (That's why his hips hurt so much.) So, I shouted, (didn't mean to, but she freaked me out), NO! Although, maybe the commode, but it depends on if he can take stairs when he comes home. (I already have plans on how to get his bed down here and his sofa upstairs, until he can take steps, but even his doctor doesn't know if he'll be using steps. His doctor did say John is very motivated to go back to life, so he suspects he will, but he doesn't know. This is a one-day-at-a-time thing.)

So, the woman ordering all these supplies said she'd have to find out what will be needed and she'll get back to me tomorrow. I immediately called his doctor. He quickly asked me if she had a Chinese accent. I confess. I can hear accents, but I can never guess where someone comes from based on the accent. But I did remember her name, and the doctor knew it was who he thought it was. Sounds like she freaks out quite a few families, but he said John would only need all these things, if he was going home at the end of the week.

I am a bit bummed though. John won't be eating for a couple to a few weeks. I thought "soon" meant this week.

Calories have hit the point where lack of them causes problems. When they put the feeding tube in his stomach two days ago, he couldn't be fed until it healed. Zero calories over the course of three days, (because he takes longer to heal on Heparin -- a blood thinner), meant he was freezing to the point of shivering. (His temperature is hovering around 97, so he really is cold.) Plus, he has nothing left in the reserves for exercising to regain muscle strength. That's why he was too dizzy to try to stand two days ago, and that's why he was too weak to sit on his own today. (He could sit before the feeding tube changed locations. He had to be helped to get in the position, but once there, he was able to sit.) And, his blood pressure is very low. (It went all the way up to 94/47 while I was there. It was lower than that before. He got dizzy and he was lying down.)

But, he started getting food through the tube last night, so his strength should return. (I don't know what he weighs now, but I suspect he is what he should weighed. My fear, and the doctors are agreeing with me, is he will be underweight by the time he comes home. He was 90 pounds overweight. He hasn't eaten in 73 days. We both fear -- because he's already asking for help from a nutritionist on how to eat right -- it's going to be hard for him to be satisfied with just normal amounts of food for someone his size.)

Still. We're hoping he goes to rehab in two days. ("By the end of the week" might mean Saturday or Sunday too.) Better yet, they got him in the only rehab that won't cost us a fortune -- the one directly connected to the VA hospital. (And I can't help but be glad it's right across the street, so I shouldn't get lost getting there.)

Based on everything doctors have been telling me all along, I had three goals for John.
1. Have a real birthday that including presents and food. (He got the infection, so I couldn't bring the presents into his room. Still waiting to give him his Christmas stocking.)

2. Watch the Super Bowl with other guys. I can think of nothing worse for his emotional well-being than watching the Super Bowl by himself. (Unless he has a sofa or empty bed in the room and visiting hours are late, I can't hang out for the whole event.) I'm not that fun to watch it with because my interest is only the commercials -- but the rehab is for vets. Surely, it has to be a great man-cave event. (I really hope he can eat then, because what's a Super Bowl without food involved? At this point plain mashed potatoes would be as good as Buffalo wings for most Super Bowl watchers.)

3. Be home and able to sit out back in our garden in time for planting season. (May 1st is the beginning of growing season, so that should be doable.) I don't want him to do any of the work, but I'd love it if he orchestrate what goes where and let me do the work.

I didn't get my first goal. I want my second two anyway.

He's going to rehab! Eleven weeks, by then of ICU, so it will be good that he gets out of the hospital.
 
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Depleted

Guest
In all things we know our faith in the LORD will never fail because his love never fails. He can do the impossible, he is the maker of miracles.. To him we pray and give our thanks. May you receive all his blessings.
The Lord never fails. Sometimes my faith does.
 

happyface

Senior Member
Jan 19, 2009
1,496
35
48
The Lord never fails. Sometimes my faith does.
HI Lynn, May the Lord keep you strong, you really are so blessed. I am continuing to pray for your husband, my faith as been stronger than ever today. Rod did a test a got 27 out of 30 right. The doctor said its a miracle hes alive, as it was a massive stroke and large blood clot in is main vessels in the brain, the clot busting medication helps clear the clot without any brain damage. The prayer is being continued just like i am for your husband, as to whether rod will not have nay more major strokes. The doc said its a wonder he wasnt paralised for life. The lord is our only strength, and we must fight on. I praise God for your husbands progress also. Love you from Mandy xxx I am writing from the bottom of my heart to you Lynn. xxx
 

JesusLives

Senior Member
Oct 11, 2013
14,551
2,171
113
Have not been on the site as much lately and dropped in to check on how things are going and it is miraculous the progress John is making so I want to leave you with some positive thoughts... Hugs and prayers for you both...

~




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~
 
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Depleted

Guest
Big prayer request:
Yesterday we were promised a bed from the only rehab center around that belongs to the VA. This was great news because we can't afford the copay for another one. And there is a Medicare co-pay after 21 days, while estimates for John were "5 weeks."

I just talk to another social worker, who wants to know if he can't get in that one, where do I want him to go. I told her "free," and then explained the problem. I also told her I was promised. Well, the woman who promised "misspoke."

So, after not getting me to commit to a rehab center we can't afford, she's going to check if the VA's rehab has a vacancy and get back to me.

Please pray it has one, because I have no idea what we'll do if they don't.