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I thought I would share my testimony with you all! Here is my short version of the story as if I typed the whole thing I would be here all night lol. If you want to talk more about it, feel free to PM me.
I was born with a syndrome called the 'Velo facial cardio syndrome.' But I wasnt officially diagnosed with it until i was 6yrs old. This syndrome is very new and rare. Only 4% of the total world population have it and its only been around since the 70s.
With this syndrome..I have 1 kidney and a bunch of heart problems where i can just pass out randomly with no warning. The doctors only gave me to 12yrs old to live. I have been close to death a few times and had 2 major surgeries so far when i was younger. Ive spent lots of time in the hospital all of my life.
When I was younger..I was made fun of quite a bit by christians..including pastors that my dad worked with and i was burned by the church big time. It was my non christian friends who were there for me and supported me..encouraged me and such so i decided i hated christians and i hated church even though i went every week because of being a pastors kid.
When I was 12..that really started to go downhill for me because i was suppose to die that year. I was hanging more and more with my non christian friends. I got into playing music..I picked up the guitar for the first time and fell in love with it. It was my dream to become a big rock star. I would be practicing the guitar all the time. I started playing in bands, playing in shows and living the life of a 'musician.' and to get ladies since they love musicians and all that stuff.
I met a girl when i was 12 and we quickly started dating. I would go to parties..drink and just be the 'fun guy'..because my motto was 'im suppose to be dead' i was the life of the party. We dated for 3yrs and did alot of stuff we shouldnt have done.
I always felt more safe with non christians..i guess because they didnt judge as much. I was feeling really empty inside though and didnt know how to deal with my physical and emotional pain so i too started to cut and was thinking of suicide. Until i was at a youth camp where i totally broke down and gave my life to Christ. The people there seemed really different in a good way.They were loving and there was something really different about them which I wanted.
Now in the last couple of years..my medical stuff have been getting worse. I found out a couple of weeks ago from my docs my heart is at 47% and the danger zone is 43%. So im kind of close to the danger zone and my docs say its going to keep getting worse for me as the years go by..eapecially the pain. The pain gets real bad alot of times. I will be going to the hospital for the rest of my life as they want to keep an eye on things. I've been blessed with great doctors.
Now that i truly have Jesus. I dont have to be afraid anymore. I can face this medical stuff and im usually always joking around with my doctors whenever im there. I like to make a positive difference in the world wherever i am..make people laugh and such and to work hard no matter how much pain im in. Im also ready to go home to heaven whenever that may be. Although im 27 now..Jesus is clearly keeping me here on earth for a reason. Life is too short to worry about little things. Enjoy life.
I am also now playing my music for God's glory! I'm always tempted to go to the other side again though as everyone says I have the talent to go as far as I want to go. I went to college to study music and the guitar. But Im in this for God and to promote him through my music and my testimony and to just being a postitive difference in a dark lost world and to not play for fame and money. I get to travel every once in awhile to perform and share my testimony and to let God do his work thorugh that.
I was born with a syndrome called the 'Velo facial cardio syndrome.' But I wasnt officially diagnosed with it until i was 6yrs old. This syndrome is very new and rare. Only 4% of the total world population have it and its only been around since the 70s.
With this syndrome..I have 1 kidney and a bunch of heart problems where i can just pass out randomly with no warning. The doctors only gave me to 12yrs old to live. I have been close to death a few times and had 2 major surgeries so far when i was younger. Ive spent lots of time in the hospital all of my life.
When I was younger..I was made fun of quite a bit by christians..including pastors that my dad worked with and i was burned by the church big time. It was my non christian friends who were there for me and supported me..encouraged me and such so i decided i hated christians and i hated church even though i went every week because of being a pastors kid.
When I was 12..that really started to go downhill for me because i was suppose to die that year. I was hanging more and more with my non christian friends. I got into playing music..I picked up the guitar for the first time and fell in love with it. It was my dream to become a big rock star. I would be practicing the guitar all the time. I started playing in bands, playing in shows and living the life of a 'musician.' and to get ladies since they love musicians and all that stuff.
I met a girl when i was 12 and we quickly started dating. I would go to parties..drink and just be the 'fun guy'..because my motto was 'im suppose to be dead' i was the life of the party. We dated for 3yrs and did alot of stuff we shouldnt have done.
I always felt more safe with non christians..i guess because they didnt judge as much. I was feeling really empty inside though and didnt know how to deal with my physical and emotional pain so i too started to cut and was thinking of suicide. Until i was at a youth camp where i totally broke down and gave my life to Christ. The people there seemed really different in a good way.They were loving and there was something really different about them which I wanted.
Now in the last couple of years..my medical stuff have been getting worse. I found out a couple of weeks ago from my docs my heart is at 47% and the danger zone is 43%. So im kind of close to the danger zone and my docs say its going to keep getting worse for me as the years go by..eapecially the pain. The pain gets real bad alot of times. I will be going to the hospital for the rest of my life as they want to keep an eye on things. I've been blessed with great doctors.
Now that i truly have Jesus. I dont have to be afraid anymore. I can face this medical stuff and im usually always joking around with my doctors whenever im there. I like to make a positive difference in the world wherever i am..make people laugh and such and to work hard no matter how much pain im in. Im also ready to go home to heaven whenever that may be. Although im 27 now..Jesus is clearly keeping me here on earth for a reason. Life is too short to worry about little things. Enjoy life.
I am also now playing my music for God's glory! I'm always tempted to go to the other side again though as everyone says I have the talent to go as far as I want to go. I went to college to study music and the guitar. But Im in this for God and to promote him through my music and my testimony and to just being a postitive difference in a dark lost world and to not play for fame and money. I get to travel every once in awhile to perform and share my testimony and to let God do his work thorugh that.