Please allow me to begin by saying, AMEN! The strength you exhibit throughout your story is amazing! The faith you explain in the end; is up lifting {to me}. Whether this was faith learned through the process or known all along!!!
My story of being ‘disabled’ begins in June of 2003: “I visited a chiropractor the morning of June 30, 2003. The chiropractor was too forceful in his adjustment/manipulation. Later this day (three hospitals later) it was determined that I had sustained a left vertebral artery dissection, a moderate sized cerebellar hemispheric stroke, and a paramedian artery stroke in my pons. The Cerebellar infraction was of sufficient size that it began to swell. I required a ventriculostomy to treat acute hydrocephalus, and a craniotomy for surgical resection of the cerebellar stoke bed. Since June 30, 2003; I have made an excellent over all recovery, regaining alertness, full cognition, and having considerable improvement in my double vision and ataxia. I am now considered ‘disabled’ by and remain under the care of my neurologist.” Atop of this; I have recently been diagnosed with CPTSD (Complex Post Traumatic Stress Disorder). This stems not only from the head injury, but also a chaotic childhood.
How I feel in regards to these issues of mine: the head injury… … I have good days and bad. When the vertigo, vision, balance and cognitive issues are on a decent baseline I feel good and wish I could get back to work, I feel like a productive, contributing and ‘normal’ adult. On the ‘off days’. I really wish that chiropractor had to spend just one day in the life of me now. I think that would be sufficient price paid by him. To know how it is to be: on a constant ‘merry-go-round”; see 2-4 of everything you look at; have to use glasses with prisms in them; pray you don’t have to be up and moving too much in case you are too unstable. Learn you own limitations all over again because they are now NOTHING close to what they use to be. I wonder how he would like to have had to learn to: swallow, walk, talk, sign (I use ASL to communicate with my daughter), and write all over again.
My most recent ‘heavy feeling’ was just a week ago; I had a heart sinking thought of my children having to cope with the death of their mother at the ages of 13, 11 & 9. I am so thankful they did not have to!!
Tolerating my disability; I currently tolerate them all much better. I am now 13 years use to spinning on a daily basis. I have adjusted to my baselines and am truly thankful that I have more of them days than not. I can now just be calm and at rest when my days are not so good. It has taken me 13 years to reach this point, and now understand the doctor’s decision to not release me for employment. In regards to the CPTSD; I am thankful for learning and continuing to learn the hidden reasoning’s behind my behaviors in certain situations and or with certain individuals. With this knowledge in my pocket; I now can tolerate this condition with much more acceptance and understanding.
I do not think you ‘bold or arrogant’ for saying what you do in regards to your personal struggles. I agree, and let me tell you; I can so relate. I too would not be who I am today if I had not endured the lessons I needed to endure for God to bring me to this current place in my life. I am thankful to be alive today and continuing to learn the lessons my heaven Father have for me. I never once blamed God or thought He didn’t love me either, however its just been in the last 3 months that I am drawing so much closer to my heavenly Father and I am learning to see myself through His eyes. This has been the biggest blessing since the injury, for I no longer feel I am useless and disposable!!!!
Thank you so much for starting a feed like this. This was good ‘therapy’ for me and all of us who choose to share our story. I believe it helps us all see just how loving, accepting, caring and ever present God is to all who choose to become his adopted child!
Ray